Remaining wishes: Martinez De La Paz family

Liliana, mother and husband Juan with their children Jesus, 2, and Juan Diego, 9 in their Austin home. The De La Paz family has two sons with spinal muscular atrophy, which is a genetic disorder that limits their mobility. Jesus, 2, and his brother Juan Diego, 9, have a life expectancy of about 20. Erich Schlegel/For American-Statesman

Liliana, mother and husband Juan with their children Jesus, 3, and Juan Diego, 9 in their Austin home.
Erich Schlegel/For American-Statesman

It’s a new year, and a new start for many of the families featured in Statesman Season for Caring. This week we’re highlighting the progress they have made since we introduced you to them on Nov. 27, and what needs the families still have.

Liliana De La Paz, 30, and Juan Martínez Domínguez, 29, have two sons with spinal muscular atrophy type 2, which causes a weakening and loss of muscle mass. Both Juan Diego, 9, and Jesús, 3 have wheelchairs, and Juan Diego now has a ventilator and a feeding tube. The disease comes with a life expectancy of 20.

SpawGlass, a commercial real estate construction company, will work to make their home accessible, and real estate attorney Mark Hawkins of Armbrust & Brown is going to help the family establish clear ownership of the house, so that work can be done.

Immigration attorney Jeff Peek of Peek & Toland has agreed to take the parents’ cases to become legal residents. Once that happens, they can receive drivers’ licenses and a van that has a wheelchair ramp that has been donated.

They still have a few items on their wish list:

  • Gift cards to H-E-B, Target and Walmart.
  • Dressers to store medical equipment.
  • Electric blankets.
  • Memory foam pillows.
  • A recliner.
  • A tall dining room table.

To find out more or give an item on the wish list, call Any Baby Can at 512-454-3743 or visit anybabycan.org.

 

To make a financial donation, go to statesman.com/seasonforcaring or send a check to Season for Caring, P.O. Box 50066, Austin, Texas 78763-0066.